Justine
show transcript
I do remember when I had the surgery, I was told that my lungs was just dead tissue, there was no way I should be alive. I think I was like an hour left – from living. I only had a slice, I was told, inside a lung that was lung, that was alive, and all of it was just dead tissue. The disease, LAM – lymphangioleiomyomatosis – causes cysts to grow inside the lungs, and I had hundreds, which basically destroyed … it was all dead tissue. And I remember the last 6 months being at hospital – I mean I was basically being kept alive. And I was a vegetable. I was attached with all these drips and tubes and oxygen machine to a wall. I didn't have a right lung, it was destroyed; my left lung was just like a third left. They had it on a constant pump machine to keep that bit inflated, to keep me alive.
And I remember I was induced into a coma, from an emergency operation. Lung collapsed 16 I think it was or 15. And, you know, they were told I think, my parents, it was four hours, the operation was going to take – and I didn't wake up until 504 hours later, which equates to about three weeks. So … you know, going back, thinking then, it was very dark. It was a very bitter, painful journey, that process. I could hear the doctors saying ‘I don’t think she’s gonna get off life support.’ I knew that if I didn’t get off life support I wouldn’t have my transplant, because you’re too weak;